ALS patients losing time and hope as they wait for insurers to cover a pricey new drug

first_img By Ed Silverman May 21, 2018 Reprints What’s included? Pharmalot Columnist, Senior Writer Ed covers the pharmaceutical industry. PharmalotALS patients losing time and hope as they wait for insurers to cover a pricey new drug @Pharmalot Sarah Benoit, who has ALS, uses a walker in her home in San Bernardino, Calif. Rachel Luna for STAT [email protected] STAT+ is STAT’s premium subscription service for in-depth biotech, pharma, policy, and life science coverage and analysis. Our award-winning team covers news on Wall Street, policy developments in Washington, early science breakthroughs and clinical trial results, and health care disruption in Silicon Valley and beyond. Ed Silverman About the Author Reprints GET STARTED Daily reporting and analysis The most comprehensive industry coverage from a powerhouse team of reporters Subscriber-only newsletters Daily newsletters to brief you on the most important industry news of the day STAT+ Conversations Weekly opportunities to engage with our reporters and leading industry experts in live video conversations Exclusive industry events Premium access to subscriber-only networking events around the country The best reporters in the industry The most trusted and well-connected newsroom in the health care industry And much more Exclusive interviews with industry leaders, profiles, and premium tools, like our CRISPR Trackr. What is it? Log In | Learn More For the past two years, Sarah Benoit has been getting around with the help of a walker, waiting for a medicine that’s out of reach.Benoit, a former congressional aide, has ALS, a fatal neurological disease that gradually causes muscle weakness and paralysis. As it progresses, she struggles to maintain a normal life, but holds out hope that a drug called Radicava — the first new treatment in 22 years — will slow her deterioration. Unlock this article by subscribing to STAT+ and enjoy your first 30 days free! GET STARTED Tags drug pricinginsuranceneurologypatientspharmaceuticalspolicylast_img

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